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About four in the afternoon, my friend and I were at a bar playing with these little plastic toys left in a basket for drunk kids like us. She had set up a wall of fencing with soldiers and cowboys, defending it from my wall of teepees and Indians that pointed their little bows and arrows at the guns. My toy horse was adorned with a hot pink cocktail umbrella.

It was Sunday and I was spending it doing what I always did - Bloody Mary's over Brunch, shopping at consignment stores, and happy hour. I loved life as a cocktail waitress, a life of 5am bedtimes and tequila and bar-hopping fun. I loved it, but all this was about to change. With bourbon in hand, I laid out my plans for the future.

Not long ago, I stripped Miriam of her jammies and reached for her shirt and pants combo of the day. "No," she said, waving away my hand. "Wear dress."

"No," I replied, "today we're wearing these." (It's an unfortunate but unavoidable fact that most moms refer to their children as we. Thus the inevitable stress when our children show any signs of independence. I wish I were speaking to my mother so I could apologize to her for this, but I'm not, for myriad reasons that could probably be boiled down to my need for independence from her. Gotta love that feedback loop.)

"No," Miriam growled. "Wear dress. WEAR DRESS!"

I suspected this day would come.

May 26, 1948- July 2, 2009

There's a kaleidoscope in the conservatory where I've stopped with my daughters. There's a circular bed of sand with sticks and rocks, and above, the lenses and mirrors. We shift the sand around and look, and each time the picture is different. If you look deep inside a kaleidoscope, what you see is the ocean of patterns of light, surrounded by a rim of darkness, curving away like night falling.

Trying to write about Bonnie Tinker is kind of like this. The ways in which Bonnie touched people's lives are complex, shifting and beautiful.

I'm writing this today, not because I see myself as a political activist, but because our daughter lives with an on-going, critical need for healthcare, and because I want everyone to be able to put a face to the idea of healthcare reform. And what better face than our goofy, gorgeous, brave baby girl's?

Anyone who has ever met my daughter knows that she is just about the most lovable and kind person ever born. But they probably don't know about the struggles that she has faced, nor those that we have faced as a family because of her chronic condition. We're pretty private about a lot of this stuff, because, well, it isn't really anyone's business but our own. But I feel like this is an important time for honesty.

We moved from Colorado to Tulsa in Spring, 2003. At that time Sophie was two years old, and was the healthiest kid that you had ever met. In the two years she lived in Colorado, she had one stomach virus and two colds. Within a month of moving to Tulsa, Sophie developed pneumonia. And then weeks after that, she had it again. And then weeks after that, she had it again. This was a frustrating time, but we weren't too worried. We just kept going back to the doctor and getting more antibiotics and steroids. What would any parent do?